ooBdoo.......Rare Diseases News Feeds

About Rare Diseases
Wed, 07 Jan 2009 05:07:17 +0100

Top Orphan Drugs Approved in 2008
A rare disease occurs in less than 200,000 individuals in the United States, or less than 5 per 10,000 individuals in the European Union. Specialty drugs to treat rare diseases...
Sun, 04 Jan 2009 09:05:22 +0100

Jett Travolta, Kawasaki disease survivor, dies in Bahamas
Jett Travolta, the 16-year-old son of John Travolta and Kelly Preston, died Friday, January 2, 2009, after apparently having a seizure in the bathroom and hitting his head on the...
Sat, 03 Jan 2009 10:02:44 +0100

Inclusive Technology free downloads
I saw this site mentioned on About.com Special Education and thought you might be interested in it. The Web site says, "Inclusive Technology provides the very best special educational needs...
Wed, 31 Dec 2008 11:48:49 +0100

West Syndrome
West syndrome is a form of seizure disorder (epilepsy) that begins in infancy. A specific type of seizure called infantile spasm is part of this syndrome. West syndrome accounts for...
Sun, 28 Dec 2008 09:44:09 +0100

Christmas Disease and Hemophilia
Hemophilia, an inherited tendency of males to bleed, has been known about for more than a thousand years, but only brought under control in the last 50 or so years....
Wed, 24 Dec 2008 15:04:53 +0100